We arrived in New York without a problem and settled in seeing all of too many familiar faces. It was good to see everyone again, I just wish it wasnt at teh Ronald McDonald House or at the Hospital. (more…)
Hello everyone,It has been 42 days since Paris and I have been home! We have enjoyed every minute of it and have been keeping busy that I somewhat forgot that we are still dealing with Neuroblastoma. But all good things must come to an end and we are headed back to New York for scans. Fingers crossed and lots of prayers are needed for a positive outcome so that we can continue to enjoy every day without the constant medical stressors. (more…)
So we had only 1 day left and her heart continues to beat irregularly. That’s a one way ticket to ICU for more tests. Stuck in New York AGAIN!!! Last dose of IV3F8 Postponed!!!! They decided to put Paris through surgery to pull the metaport to see if the cathader impacted the heart beats, but it didn’t and now Paris is stuck with an IV. She’s recovering. I’m very nervous to learn the outcome of further heart testing. Please keep her in your prayers.