Paris’ 3 month scan results
We arrived in New York without a problem and settled in seeing all of too many familiar faces. It was good to see everyone again, I just wish it wasnt at teh Ronald McDonald House or at the Hospital. Monday-we went to clinic and had to get stuck a few times (8) to find the right vien for an IV placement. Iv’s are very difficult because she fights very hard and her veins are small. I honestly miss the port. We had the brain MRI and Echo.
- Tuesday - PET injection, PET scan, and MIBG injection
- Wednesday - MIBG scan and bone marrow aspirations
- Thursday - CT contrast (after 2 hours of tea party. I got her to drink 7oz straight with crystal light!!!!) CT scan, MRI of spine and 24 hour holter to monitor the heart.
- Friday - flew home from New York
We got the phone call early regarding the scan results-The brain MRI was clear and showed no evidence of disease!The PET, MRI of the spine and CT when analyzed showed uptake and increased growth of 1-2mm on T9 that had previously been stable since January of 2009.The Plan-we will complete cycle 2 of Temodar until Spetember 2, return to New York for a CT scan and compare results. A biospy will follow and most likely she will undergo surgery #4 to remove the mass with Dr. LaQualgia. Please continue to pray for her strength and for a positive outcome.Thank youLauren and Paris
August 12th, 2009 at 6:36 pm
Hi…ok, so I just read this… when I saved your site it only gave me the ones from the palpatations and 3F8 sagas back in July. When I actually typed you in I got the rest. I am glad MRI was clear, I know you are anxious about everything else as I was just reading it. I am thinking of you always and think I may have misinterpreted the dates ya’ll were here. I am all caught up now. I have faith that everything will go smoothly with Temador and ofcourse Dr. LaQuaglia working his magic after a biopsy in September. We too will have scans in September so hopefully our paths will cross then. We are headed for 3F8’s next week….17th-22nd. I hope to talk to you soon. Til then, know we are thinking of you, miss you guys, and hoping for all good things all around. Keep up the great work. Love, Francesca, Jeff and Jack
caringbridge/jackdemers